Official websites use. Share sensitive information only on official, secure websites. Email: sylvie. The purpose of our research was to co-design a care delivery model that supports both social and medical care from the perspective of patients and care partners.
In the first step of our co-design approach, participants from five countries were invited to share their experiences of living with PD during a narrative interview. Based on the analysis of these trajectories, we were able to integrate various patient experiences into the design of an integrated care network. The intrinsic complexity of care in PD like in many neurodegenerative diseases requires that a variety of health care professionals are involved in its management, including different medical specialists, allied health professionals PD nurse, physiotherapy, occupational therapy, speech and language therapy , and other community resources.
Several studies show that current models of care have many drawbacks, such as a lack of multidisciplinary collaboration, a lack of access to care delivery at home or in the community, and a failure to take the social needs of patients and families into account Dorsey et al. There is a need to address these gaps in care delivery by designing sustainable tailored integrated care networks together with people living with PD Kessler et al.
In other words, it is time to develop new ways of working by offering a set of methods and tools to improve communication, coordination, continuity, and efficiency in the delivery of health and social services at home and in the community for people living with PD.
To address the gaps identified in care delivery, various integrated care models or networks have been developed worldwide with different clinical, organizational, and professional levels of integration Bloem et al.
